My son’s time is running out due to
a rare disease. The FDA needs to add
more clinical trial flexibility
Posted By: Daria, 2/28/2023 3:01:21 PM
My toddler, Wheeler, will probably not live to adulthood. Juvenile Batten disease — he has the type known as CLN3 — is stealing his childhood. And then this rare disease will steal my child. Wheeler is missing the DNA needed to recycle a waste product called lipofuscin that his cells naturally produce. As lipofuscin builds up, his condition will get worse, robbing him of his eyesight, his speech, his mobility, and ultimately his life. Our only hope is finding a treatment to cure, or at least a way to slow down this unrelenting disease.
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Daria"
My toddler, Wheeler, will probably not live to adulthood. Juvenile Batten disease — he has the type known as CLN3 — is stealing his childhood. And then this rare disease will steal my child. Wheeler is missing the DNA needed to recycle a waste product called lipofuscin that his cells naturally produce. As lipofuscin builds up, his condition will get worse, robbing him of his eyesight, his speech, his mobility, and ultimately his life. Our only hope is finding a treatment to cure, or at least a way to slow down this unrelenting disease.
The Environmental Protection Agency halted shipments of toxic waste from the site of a recent train derailment in East Palestine, Ohio, to Wayne County amid outrage from Michigan officials. The Michigan Department of Environment, Great Lakes, and Energy announced the pause Friday evening, following several statements and news conferences by local officials criticizing lack of communication on the process. The train derailment occurred when a Norfolk Southern train crashed on Feb. 3, spilling hazardous chemicals and killing thousands of wildlife in the surrounding ecosystem.
“Are you anti-mask?” “Are you anti-vax?” “Are you anti-science?” Employees of Levi Strauss & Co repeatedly pummeled me with these questions during 2020-2022, when I was the company’s brand president. Why? I advocated in defense of children: against the masking of toddlers, against closed playgrounds and youth sports, for open public schools. I’m not exactly sure what an anti-science person is. But that’s not me. I’m pro-science. And that’s why I’m anti-mask.
Detroit city officials are asking for a massive raise from commissioners in charge of determining their salaries. City Council members and the clerk are seeking at least six-figure salaries, hiking their pay between approximately 28% and 68%, according to a memorandum from five councilmembers and the clerk. The Elected Officials Compensation Commission, a seven-member body appointed by the mayor and approved by City Council, is expected to determine proposed salaries of the mayor, City Council members and city clerk next week.The annual compensation for Detroit council members, who note they expend 80 hours a week on the job, is $89,547 and the council president's salary is $94,111, city records show.
Macomb County Sheriff's deputies responded to a call for a safety check on a driver pulled off to the side of the road, only to find a man in need of some emotional support. Deputies found the man, referred to by authorities by the pseudonym "Joe," on the side of a quiet road overcome by tears. Joe was on his way to work when he decided to pull off the road because he was feeling overwhelmed by stress, according to the Macomb County Sheriff's Office. In bodycam footage of the interaction, one deputy is heard asking him what they can do to help, Joe responds, "I could use a hug."
Joe Biden Makes Disgusting Statement About
Trump Supporters Lies About Possible
Abortion Ruling 25 replies
Trump Supporters Lies About Possible
Abortion Ruling 25 replies
Following all the lunacy of the last two days revolving around the leaked draft decision overturning Roe v. Wade, the White House let the president out of the basement on Wednesday. What transpired was a despicable, lie-filled speech in which Joe Biden dishonestly spoke of the Supreme Court, Trump supporters, and the economy.
Let’s start with the clip that is currently going viral in which Biden claimed the “MAGA crowd” is the “most extreme political organization that’s existed in American history.”
The FDA's Food Failure
6 replies
By the time FDA officials figured out it was spinach that was making people sick in 10 states – sending three people into kidney failure – it was too late. It was mid-November 2021 and the packaged salad’s short shelf life had passed. There was no recall. By the time FDA officials got inspectors on the ground, spinach season was over. The fields and the production facilities were empty, which made it impossible to pinpoint the source of contamination. Whatever caused the outbreak was likely never fixed.
Gretchen Whitmer’s Failed Covid Response
3 replies
In a recent Detroit News opinion piece, Governor Gretchen Whitmer opined that she released her Fiscal Year 2023 budget - a budget bolstered by nearly $5 billion in federal funds left over from prior COVID relief.Despite her political talking points, Governor Whitmer’s budget isn’t a reflection of savvy negotiations or sound business principles - she’s merely playing Santa Claus with federal giveaway dollars in an attempt to salvage Michigan’s economy after her policies devastated our small businesses and workers.
Republican gubernatorial hopeful Garrett
Soldano models transparency platform
off Whitmer’s promises 0 replies
Soldano models transparency platform
off Whitmer’s promises 0 replies
Republican gubernatorial hopeful Garrett Soldano unveiled a set of transparency and anti-corruption proposals that might sound familiar to Michigan Democrats. Soldano, a Kalamazoo chiropractor, said his “Michigan Sunshine 2.0″ platform is modeled after reforms Gov. Gretchen Whitmer supported as a 2018 candidate but hasn’t delivered on. It’s also a response to sexual harassment and ethics investigations facing former House Speaker Lee Chatfield, a Republican who left the chamber due to term limits in 2021.
Washington — Starting Saturday, private health insurers will be required to cover up to eight home COVID-19 tests per month for people on their plans. The Biden administration announced the change Monday as it looks to lower costs and make testing for the virus more convenient amid rising frustrations.
Under the new policy, first detailed to the AP, Americans will be able to either purchase home testing kits for free under their insurance or submit receipts for the tests for reimbursement, up to the monthly per-person limit.
Princeton University in New Jersey will forbid students from leaving the school’s host county once the new semester starts due to rising COVID-19 concerns. Barring “extraordinary circumstances,” students can’t venture beyond Mercer County and Plainsboro Township beginning on Jan. 8 through at least Feb. 15. The restriction does not apply to sports teams. Citing a surge in COVID-19 cases, the school delayed the return of students to the Ivy League school by a week.
Remembering Gelly on My Melancholy Christmas
10 replies
I fooled around and fell in love. No, not that kind of “in love.” Guys like me who marry up don’t make that mistake if they know what’s good for them. No, I fell in love . . . with a puppy. And since I lost him a few days ago, there’s a hole in my heart this Christmas. My friend Jonah Goldberg is about the best writer I know. With that kind of touched-by-God talent, you would think the first thing he’d want you to know about him is that he’s a writer.
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Twitter users recoiled after President Biden gave intimate details of his treatment in a medical facility Tuesday.
Biden was speaking about healthcare policy in Virginia Beach, Virginia, when he told a story about a nurse he said was named Pearl Nelson.
"She'd come in and do things I don't think you learn in nursing school," he said.
She'd whisper in my ear, I couldn't understand, but she'd whisper, and she'd lean down and actually breathe on me to make sure there was a human connection," Biden continued.
Pennsylvania Republicans are calling on Democrat Senator John Fetterman to appear on camera to prove he is “alive and well” or resign.
“Because of the now confirmed lies that were told during the 2022 general election regarding the health of Senator John Fetterman, as well as the threats made against a journalist who interviewed him, the Washington County Republican Party refuses to take assurances from the Office of the Senator or Democrat operatives that Fetterman is able to carry out his duties as Senator,” the Washington County Republican Party said in a Facebook post.
“As such, we call upon Senator Fetterman to appear on camera
A proposed Oregon bill would provide the deep blue state’s homeless population $1,000 per month that recipients could use at their own discretion.
The bill, introduced last month, would establish a People’s Housing Assistance Fund Demonstration Program to give 12 monthly thousand-dollar payments to those suffering from homelessness or who are on the brink of becoming homeless.
“Payments may be used for rent, emergency expenses, food, child care or other goods or services of the participant’s choosing,” the bill states.
People who spend more than 50 percent of their monthly household income on rent, and those who earn 60% or less of the area median income would also be eligible for the funding.
As RedState reported on Tuesday, Chicago Mayor Lori Lightfoot lost her reelection, and not by a little. According to the polls, she was something of an afterthought, falling well behind Paul Vallas and runner-up Brandon Johnson who got 33.77 and 20.29 percent of the vote respectively.
Lightfoot limped into third with 17 percent of the vote.
Naturally, like any good radical leftist, Lightfoot took no personal responsibility for her loss, choosing to blame it instead on others. In this case, the entire city of Chicago is guilty of being sexist and racist as reported by the New York Post:
“I’m a black woman in America. Of course,”
Governor Chris Sununu (R-NH) said Tuesday on SiriusXM POTUS channel’s “The Briefing” that he is considering running for president in the Republican primary.
Host Steve Scully asked, “When does Governor Chris Sununu announce that he is running for president?”
Sununu said, “Oh boy. Look, I’ll tell you – I don’t know when that is and the if and when, maybe this summer, we’ll get to that. But I’ve got to tell you, we have created this organization, and I think that’s why we’re getting a lot of national attention, and I’m honored in that the New Hampshire model is really successful. And so people have asked me
She won’t be doing any dancing tonight.
Chicago Democrat Lori Lightfoot on Tuesday became the Windy City’s first incumbent mayor in 40 years to lose re-election as rising crime in the city steered voters away from the embattled leader.
Receiving only 16.4% of the vote, Lightfoot, 60, finished behind former head of Chicago Public Schools Paul Vallas and Cook County Commissioner Brandon Johnson in Tuesday’s race.
Vallas, who took 35% of the vote, and Johnson, who obtained 20.2% of the vote, will head to an April 4 runoff election to determine who will be the city’s next mayor.
Joe Biden on Tuesday traveled to Virginia Beach, Virginia to discuss his administration’s so-called efforts to protect Americans’ access to ‘affordable’ healthcare.
Biden’s speech was full lies and bizarre stories.
Joe Biden falsely claimed his trillions in spending got the economy back on track.
Then he repeated the same bizarre story about a nurse who whispered in his ear and breathed on him.
“I had a nurse named Pearl Nelson. She’d come in and do things I don’t think you learn in nursing school. She’d whisper in my ear, I couldn’t understand,
Student Who Beat Unconscious Teacher For
Taking His Nintendo Switch Will Be Tried
as Adult 22 replies
Taking His Nintendo Switch Will Be Tried
as Adult 22 replies
A 17-year-old student who continued to viciously beat his high school teacher after he knocked her unconscious for taking his Nintendo Switch will be tried as an adult.
Brendan Depa, 17, will be tried as an adult for the brutal beating of Joan Naydich, 57, at Palm Coast, Florida’s Mantanzas High School.
The vicious and deeply disturbing assault was captured on security camera footage, which shows a student pushing a teacher to the ground and knocking her unconscious before going on to punch and stomp on her as she lies motionless and defenseless. The mother of two was struck at least 15 times in the back of the head. [Video]
During an interview with the Fox News Channel released on Tuesday, FBI Director Christopher Wray publicly confirmed that the FBI assessed that the COVID virus most likely originated from a lab by stating that the agency has, “for quite some time now, assessed that the origins of the pandemic are most likely a potential lab incident in Wuhan.”
Wray said, [relevant remarks begin around 16:45] “[T]he FBI has, for quite some time now, assessed that the origins of the pandemic are most likely a potential lab incident in Wuhan.”
He continued, “Let me step back for a second, the FBI has folks, agents, professionals, analysts, virologists, microbiologists, etc. who focus specifically
A group of Donald Trump supporters were booted from a Ron DeSantis book signing event after he allegedly ordered security to kick out fans of the former president.
The Florida governor was at a Books-a-Million store in Leesburg, Florida, on Tuesday, when Trump supporters attempted to take part in the event.
The group, however, was not allowed in, with video of the incident showing a security telling them: 'They told me to say anyone wearing Trump has to go right now.'
The group then boos at the order, calling DeSantis out for not supporting 'free speech'
Democrat Congressman Mocks God During
Congressional Hearing – Makes Social
Media Gaffe Afterward 19 replies
Congressional Hearing – Makes Social
Media Gaffe Afterward 19 replies
In a Congress full of morons, Rep. Steve Cohen (D-TN) certainly fits right in.
Recall Cohen is the same genius who deemed it a good idea to bring a bucket of KFC to a House Judiciary Committee hearing back in May 2019 to mock then-Attorney General William Barr for not showing up.
Cohen only made himself look disgusting.(Photo) Redstate.com reported that during Tuesday’s Judiciary Committee hearing, Rep. Cohen denigrated Supreme Court Justice Clarence Thomas and other conservative justices by mocking the fact our rights come from God.
“I just wondered when God decided to give women the right to vote and why God didn’t decide to give women
Here’s today’s edition of Democrats and their free money.
On Tuesday the Supreme Court will hear a pair of challenges to Joe Biden’s proposed student loan debt handout. Biden announced the plan before the 2018 election in order to fool the youths to vote for Democrats. Biden claimed he has the authority to wipe student loan payments under a law known as the Higher Education Relief Opportunities for Students (HEROES) Act, which initially intended to benefit service members deployed to Afghanistan and Iraq by waiving their student loan debt. Biden applied it to all students regardless of their contributions to the US military.